Judith Gilsenan from Debra Ireland talks to Michael about the condition known as “Butterfly Skin” and also national EB awareness week from the 23rd to the 30th of October.
Lifeline’s Nwabuogo Enwerem speaks to Judith Gilsenan, spokesperson for Debra Ireland. Debra Ireland was established in 1988 to provide patient support services and drive research into treatments and cures for those living with the genetic skin condition EB (epidermolysis bullosa). This incredibly…