Today, Wednesday  February the 28th, is  International Rare Diseases Day  and  we will be highlighting this on Lifeline today. The Last day of February was chosen for this because February the 29th was a ‘rare day’  – and while 2018 is not a leap year, it falls on today instead, to make this an annual event. This is to raise awareness for rare diseases and improve access to treatment for individuals with rare diseases and their families. Michael Hennessy speaks to Patricia Towey who is the  information and services coordinator for The Huntington’s Disease Association which is also described as a rare genetic disease, about the condition.

Podcast: Play in new window | Download (Duration: 21:03 — 28.9MB)

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