Darren J. Prior spoke to Andrew O’Reilly who is organising and taking part in a cycle Global Ride for CMT from 10-11 August 2024 along with his cousin Dr. Robert Prior to raise awareness and funds for CMT research and Robert’s work in the area in the University of Bonn.
CMT stands for Charcot-Marie-Tooth disease which is a hereditary motor and sensory neuropathy of the peripheral nervous system characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. The disease is the most commonly inherited neurological disorder, affecting about one in 2,500 people.
Both Andrew and Robert have the condition CMT along with some other family members of theirs.
Further information about cycle: https://tin-us.org/global-ride-for-cmt/
Near FM, 1 July 2024.