{"id":25545,"date":"2018-02-28T13:43:10","date_gmt":"2018-02-28T13:43:10","guid":{"rendered":"http:\/\/listenagain.org\/?p=25545"},"modified":"2018-02-28T13:43:10","modified_gmt":"2018-02-28T13:43:10","slug":"lifeline-interview-with-patricia-towey","status":"publish","type":"post","link":"https:\/\/listenagain.org\/?p=25545","title":{"rendered":"Lifeline: Interview with Patricia Towey"},"content":{"rendered":"<p>Today, Wednesday \u00a0February the 28th, is \u00a0International Rare Diseases Da<u>y<\/u>\u00a0 and \u00a0we will be highlighting this on Lifeline today. The Last day of February was chosen for this because February the 29th was a \u2018rare day\u2019 \u00a0&#8211; and while 2018 is not a leap year, it falls on today instead, to make this an annual event. This is to raise awareness for rare diseases and improve access to treatment for individuals with rare diseases and their families.\u00a0Michael Hennessy speaks to\u00a0Patricia Towey\u00a0who is the\u00a0 information and services coordinator for\u00a0The\u00a0Huntington&#8217;s\u00a0Disease Association\u00a0which is also described as a rare genetic disease, about the condition.<\/p>\n<div class=\"powerpress_player\" id=\"powerpress_player_8922\"><a href=\"http:\/\/media.blubrry.com\/nearfm\/neararchive.org\/upload\/Lifeline-28-02-18-002.mp3\" title=\"Play\" onclick=\"return powerpress_embed_html5a('8922','http:\/\/media.blubrry.com\/nearfm\/neararchive.org\/upload\/Lifeline-28-02-18-002.mp3');\" target=\"_blank\"><img decoding=\"async\" src=\"http:\/\/listenagain.org\/wp-content\/uploads\/powerpress\/playbutton-443.png\" title=\"Play\" alt=\"Play\" style=\"border:0;\" \/><\/a><\/div>\n<p class=\"powerpress_links powerpress_links_mp3\" style=\"margin-bottom: 1px !important;\">Podcast: <a href=\"http:\/\/media.blubrry.com\/nearfm\/neararchive.org\/upload\/Lifeline-28-02-18-002.mp3\" class=\"powerpress_link_pinw\" target=\"_blank\" title=\"Play in new window\" onclick=\"return powerpress_pinw('https:\/\/listenagain.org\/?powerpress_pinw=25545-podcast');\" rel=\"nofollow\">Play in new window<\/a> | <a href=\"http:\/\/media.blubrry.com\/nearfm\/neararchive.org\/upload\/Lifeline-28-02-18-002.mp3\" class=\"powerpress_link_d\" title=\"Download\" rel=\"nofollow\" download=\"Lifeline-28-02-18-002.mp3\">Download<\/a> (Duration: 21:03 &#8212; 28.9MB)<\/p><p class=\"powerpress_links powerpress_subscribe_links\">Subscribe: <a href=\"https:\/\/listenagain.org\/?feed=podcast\" class=\"powerpress_link_subscribe powerpress_link_subscribe_rss\" target=\"_blank\" title=\"Subscribe via RSS\" rel=\"nofollow\">RSS<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>Today, Wednesday \u00a0February the 28th, is \u00a0International Rare Diseases Day\u00a0 and \u00a0we will be highlighting this on Lifeline today. The Last day of February was chosen for this because February the 29th was a \u2018rare day\u2019 \u00a0&#8211; and while 2018 is not a leap year, it falls on today instead, to make this an annual [&hellip;]<\/p>\n<div class=\"powerpress_player\" id=\"powerpress_player_8923\"><a href=\"http:\/\/media.blubrry.com\/nearfm\/neararchive.org\/upload\/Lifeline-28-02-18-002.mp3\" title=\"Play\" onclick=\"return powerpress_embed_html5a('8923','http:\/\/media.blubrry.com\/nearfm\/neararchive.org\/upload\/Lifeline-28-02-18-002.mp3');\" target=\"_blank\"><img decoding=\"async\" src=\"http:\/\/listenagain.org\/wp-content\/uploads\/powerpress\/playbutton-443.png\" title=\"Play\" alt=\"Play\" style=\"border:0;\" \/><\/a><\/div>\n<p class=\"powerpress_links powerpress_links_mp3\" style=\"margin-bottom: 1px !important;\">Podcast: <a href=\"http:\/\/media.blubrry.com\/nearfm\/neararchive.org\/upload\/Lifeline-28-02-18-002.mp3\" class=\"powerpress_link_pinw\" target=\"_blank\" title=\"Play in new window\" onclick=\"return powerpress_pinw('https:\/\/listenagain.org\/?powerpress_pinw=25545-podcast');\" rel=\"nofollow\">Play in new window<\/a> | <a href=\"http:\/\/media.blubrry.com\/nearfm\/neararchive.org\/upload\/Lifeline-28-02-18-002.mp3\" class=\"powerpress_link_d\" title=\"Download\" rel=\"nofollow\" download=\"Lifeline-28-02-18-002.mp3\">Download<\/a> (Duration: 21:03 &#8212; 28.9MB)<\/p><p class=\"powerpress_links powerpress_subscribe_links\">Subscribe: <a href=\"https:\/\/listenagain.org\/?feed=podcast\" class=\"powerpress_link_subscribe powerpress_link_subscribe_rss\" target=\"_blank\" title=\"Subscribe via RSS\" rel=\"nofollow\">RSS<\/a><\/p>","protected":false},"author":1,"featured_media":23068,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9,21,32,33],"tags":[1865,7655,2152,9702,9703],"class_list":["post-25545","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-currentaffairs","category-general","category-lifeline-2","category-listenagain","tag-lifeline","tag-michael-hennessy","tag-nearfm-2","tag-patricia-towey","tag-the-huntingtons-disease-association"],"_links":{"self":[{"href":"https:\/\/listenagain.org\/index.php?rest_route=\/wp\/v2\/posts\/25545","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/listenagain.org\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/listenagain.org\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/listenagain.org\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/listenagain.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=25545"}],"version-history":[{"count":1,"href":"https:\/\/listenagain.org\/index.php?rest_route=\/wp\/v2\/posts\/25545\/revisions"}],"predecessor-version":[{"id":25547,"href":"https:\/\/listenagain.org\/index.php?rest_route=\/wp\/v2\/posts\/25545\/revisions\/25547"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/listenagain.org\/index.php?rest_route=\/wp\/v2\/media\/23068"}],"wp:attachment":[{"href":"https:\/\/listenagain.org\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=25545"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/listenagain.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=25545"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/listenagain.org\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=25545"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}